Monday, November 19, 2012

It's been a month!

It hard to believe that it has already been a month from Iain's surgery!!

His body is healing well.  We saw the cardiologist last week.  His incision looks good. There are still some stitches that need to come out.  Unfortunately, Tim and I are to do it!  He said not to be surprised if the one that is still there is 2 inches long!   YIKES!  It is possible to get an infection from the stitch, which is why he wants us to work on it.

He also expressed to us, that he wasn't on the same page as the surgeon, as far as the repair was handled.

He understands, the surgeon kept the pulmonary valve in tact, because that is the BEST case scenario. It usually means that no further surgeries are needed. However, it is only best case, if the PV grows with Iain's heart.

The surgeon removed muscle below the valve, but did not in fact WIDEN the PV.  Since birth, Iain's PV has narrowed, which is why our cardiologist is concerned.

It isn't something that we will know anytime soon.  Dr. Consevage will continue to keep an eye on the PV with regular Echo Cardiograms. Iain will have a lifetime of seeing a cardiologist.

Iain is still having difficulty sleeping.  During the day, we are lucky if he will sleep for 45 minutes at at time.  At night he is up at 11:00, 1:00, 4:00 and then at random times crying between 5:00 and 8:00.  Tim and I are both very tired.  We don't know WHY he is waking up, which is a bit frustrating.

Please pray that God continues to provide us with energy to get through these days!

Monday, November 12, 2012

26 Days Post Op

We have finally hit "normal"!

Iain is doing so well, these days.  This past weekend, we stopped all pain meds and he's not showing any signs of pain.  We are so thankful that he is healing so well!

His incision is looking good.  He still has some puffiness and his chest isn't flat.  But the incision is already fading.  We have heard that as he grows, that incision will be come less and less obvious.  A huge benefit to the the quick healing of little babies!!

We have another check up tomorrow, but last weigh in, he was 13 lbs 4 oz.  I'm expecting to be close to 15 lbs!!  He's getting heavy, but we are thankful that he's gaining weight.

It's hard not to compare each child's milestones, so I'm trying to keep all my expectations low.  His neck is getting stronger every day.  We are limited in what he is able to do.  No tummy time for a few more weeks.  I think this has affected his development, but I don't think there will be long term effects.

What the Doctors have said so far, is baring anything unexpected, Iain will most likely NEVER need surgery on his heart again!! We are so thankful for this outcome.  

Our hearts of full of thankfulness for God's kindness in Iain's life!